Just writing this really quick before I forget this conversation with Jake. The other day, while Jake was typing up what we call, "a brain dump" we started chatting. He very pointedly asked me to change some language I use.
Since I am constantly watching every word I use already, I admittedly was surprised and slightly exasperated. He started, "When I'm upset and having a meltdown where I may be physically dangerous, throwing my body, jumping and running around, don't tell me to stop because that will make me worse." "What do you want me to say when I see you so upset and maybe dangerous?" "I want you to tell me to go take a break, in a nice voice." "What's the difference between saying 'stop' and 'let's go take a break'?" "When you say stop it makes me think I did something wrong." There is so much fear during the teenage years that every word, even the tone of every word matters. The look on your face matters. How you hold your head matters. Where your arms are, matters. Protecting your teenager's self esteem is critical, every teen, every minute, especially those with multiple disabling challenges like Jakey.
2 Comments
Melissa Coligan
11/3/2018 08:27:34 am
I love this!!! As mom to a 14 year old daughter it’s a good reminder!! Learning so much from you Jake 💙
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Michelle Gutierrez
11/5/2018 11:18:08 am
Thank you for sharing! I am currently a student working on my masters at George Mason but I am also a mother to a child that has a very similar story. My son is adopted, my son shares many of the same qualities of those with ASD but I have yet to get him diagnosed because he makes good eye contact. Your blog and Jake is helping me to communicate with my son. He is verbal but his emotions are not always easy for him to understand or express. He does not identify what is bothering him, I am the investigator always trying to figure out what caused reactions. In some ways it's getting easier but he's going through puberty so in some ways it's changing (and at times terrifying) he's only 10 but already weighs more than I do. He has a heart of gold but he has a part of him that he himself does not understand or and can't control. I just wanted to thank your family and Jake for allowing me to see, just this post was helpful! My repsonse to him means the difference between being late to school and an emotional meltdown for our morning or things running smoothly. Grateful
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