While in Texas for the World Autism Organization International Congress, Jake's brain was working overdrive. He wanted (needed) to write to manage his thoughts, so we banged out a bunch of blogs on a variety of topics. We wrote as we scrolled through his 500+ notes in his phone. Two of the scariest things have combined to terrify Jakey, brain changes and loss of control. Jenn
"Oftentimes, now during puberty, I struggle with intrusive thoughts. It can happen numerous times every day. When I am calm, when I am playing on my computer, when I am eating dinner or any time.
The thoughts that pop into my head are about all kinds of things: getting in trouble, girls, Impractical Jokers TV shows, YouTube videos that I’m not supposed to watch, threatening thoughts, police & crimes, being silly in public and what would happen next.
I have a hard time telling the difference between what is real and what is not real. So if a thought comes into my head, I could do it…. And that could be scary.
I worry very much about being overwhelmed and losing control in public. Sometimes I think about crashing into or hurting people, sometimes it is fear of the police or what others might think that cause me to act wildly or dangerously.
Lately, the way I have been dealing with stress and these thoughts is by writing them down. I have more than 500 stress notes in my phone.
Writing them down and sharing them, helps me help others. When I share them other people may feel better because they will learn about autism. " Jake